Pessimistically Hopeful.
That’s what I’m feeling today. About a lot of things, but maybe that is really the way I’m describing my life right now.
I’m pessimistically hopeful because there are potentially some good and great things on the horizon, but when you add the real dose of life experience to that hope, I’m pessimistically hopeful at best.
To start, I’m using these pictures of this spiny cactus to remind myself that sometimes life emerges from the unexpected and thought dead. You see, we bought this spiny cactus last summer at a farmer’s market and it lived in its plastic container for almost a year sitting on the edge of the flowerbed, not planted..it was forgotten although I walked by it at least once a day and regularly thought we should plant it.. but I didn’t. Through the winter and into the spring it looked dead. I figured the couple of hard freezes had gotten during the winter must have killed it.
Finally, a few weeks ago, Doug planted it in our front bed. It was listless and couldn’t remain upright without a support. Doug put the old decorative fence piece next to it and let it lean on it. A few of the sections fell off immediately and it looked sad. Dead.
But it wasn’t.
The rain, the sun and nutrients from the ground has brought it to life. The once sad looking plant is beautiful and healthy and bringing forth amazing flowers.
And so, I’m reminding myself that sometimes life does actually deliver on the potential and possibilities. I know that sounds incredibly jaded and sad. But dang, the last decade has had some really tough lessons and lingering issues were the answers were never given and the dreams and goals never reached.
But today, I’m enjoying the beauty of the flowers and praying for that same gift for Maddie’s feet.
Yesterday we met with a new doctor, Maddie’s 31st specialist. We were never actually suppossed to see him. It was an incredibly strange set of events that got us to this Neurologist over five hours away. He was kind, and interested. He was caring and deliberate. And more than anything, he listened, he looked and he took his time. In fact, the appointment was at 10am and he spent an hour talking with us and then asked if we could come back at 2pm for testing. We did and after another almost hour of working with Maddie he gave us hope.
Maddie has been wearing AFO braces on both feet for almost a year after spending much of the previous year wearing walking boots on one or both feet when one day her feet just stopped working.
She has had every test imaginable and all come back normal. There has been no explainable reason for her feet not working. But Dr. Martin yesterday said, there is ALWAYS a reason, we just have to find it.
And he might have.
So Maddie will start physical therapy and has a plan and a goal.
More than that, we left hopeful and not defeated. Over the last dozen years, we have left defeated, disheartened and discouraged time after time from specialists. We either left with no hope or were treated dismissively as Maddie is a “complicated case.”
But yesterday, we were treated with care and dignity.
And so, I’m pessimistically hopeful.
I pray with my entire being that just like the cactus that has flowers blooming despite everything, Maddie will return to college in the fall being able to regular shoes some of the time and will eventually be free from the AFO braces. I pray that her body will grow strong. I pray that she will continue to bloom, just like she always has, despite the struggles that are put in her path.
If you have special dietary needs, Disney can’t be beat!
If you have been around here much, you know that my sweet daughter Maddie has faced 18 years of health struggles, mysterious symptoms and daily pain. Her strength and grace in the midst of chronic health problems simply amaze me.
Emily Maxwell McLemore 