Rebuking the Lie

I am 44 years old and I have lived most of my life thinking that I am fat. The reality is that I’m not. Yes, I need to lose 15 pounds. But I’m fit. I’m healthy. I’m strong. I’ve been these things most of my life.

But the reality and the mind are not necessarily friends.

This weekend while sitting and talking with one of my sisters, she told us the story of rebuking a lie about herself and her parenting that had taken hold in her head. Last fall an incredibly mean-spirited person called her some ugly names and said she was a bad mom. She is NOT a bad mom. She is an INCREDIBLE mom. She is so thoughtful and consistent in her parenting. Even though she is still early in the parenting journey, I listen and learn from her all the time. The reality is that the person who said ugly things about her, didn’t know her and knew nothing about her parenting.. but the seed was planted and she realized that she had to rebuke the lie and claim freedom and grace and strength in the fact that she is a GOOD mom.

I listened to the story and was outraged and ready to go fight this nameless person. I was so mad on my sister’s behalf.

Last night after we got home and I was getting ready for bed, I realized that I have been struggling for YEARS with a lie that took hold in my head and has paralyzed me. Everyday when I look in the mirror and consider my food choices, in the back of my mind a little voice has said, “what does it matter, you are just a fat a** anyway..”  I was shocked. I realized for the first time in probably 30 years what was happening to me.

So this morning, I decided to do some research and look for physical proof that I have been a fat a** all of my life.

Here is what I found. I was not fat.

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Out of 44 years, I have three years where I was overweight and one year where I was very heavy. During the 2010-2012 years I had a very sick child where I took her to the doctor over fifty times each of those years… and I had a baby in 2009.  In June 2012 I realized what was happening and took control of my health.

To anyone else, I would have called out that lie that they were saying about themselves. I would have preached grace.

But for myself, I believed the lie.

So today, I am rebuking the lie that I was told so many years ago. Oh the power I gave someone else’s words. The careless words of others have wounded me daily for years.

And no more.

I am not fat.

Today I am embracing freedom and grace.

Today I am claiming my mental and emotional health back.

Today I am standing on the promise that I am created in God’s perfect image and that I am STRONG. I am HEALTHY. I am FIT!

Today, I rebuke the lie that I have allowed define me for all of these years.

No more.

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Momma wasn’t ready to go from Walking Boots to AFO braces

IMG_3463If you have been around here much, you know that my sweet daughter Maddie has faced 18 years of health struggles, mysterious symptoms and daily pain. Her strength and grace in the midst of chronic health problems simply amaze me.

The past year has been no different. In fact, if anything, she has been more resilient and more determined that her limitations would not hold back her dreams.

She graduated a month ago from high school, 23rd out of 216 in her class. She crossed the stage wearing walking boots on both feet because of a spontaneous bilateral foot drop.

Since that time she has been to three different specialists, has had nerve testing and has had body scans completed.. and there is no medical reason for her feet to not work. The only explanation is that this must be a side effect of her auto-immune disease. And because there is no nerve damage and no “reason” for this manifestation, there is no prognosis or timeline for recovery. Her first episode with a foot drop was back in November and it just affected one foot. This episode took out the other foot and set back the first foot that had been recovering. The only link.. she was in a flare of her kidney disease.

So here we are in Texas and it was 105 degrees today. Neither of her feet work to be able to walk without support and they aren’t getting better. The walking boots are bearable if you don’t have to wear them all the time, and if you know its just for a few weeks… but not if there is no end in sight.

Today we went to the Hanger Clinic and Maddie was fitted for AFO braces. This was real. And IT. HURT.  It hurt because we had to acknowledge that we don’t know when/if she will get better. Every night I tell her that maybe she will wake up tomorrow and her feet will work. But we have to make realistic decisions and choices.

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Maddie chose the Noodle AFO brace as we were able to take it home today. She can get custom ones later if we see that she will need them.  These braces are carbon fiber and will allow her to have more mobility.

She walked around in them and then we paid our portion of the bill.. Dang. These things are expensive…

The specialist that helped us was fantastic and she went to college at Texas Women’s were Maddie will start in the fall, so that was nice as she had first hand knowledge about the terrain that Maddie will walk.

From there we went to Fort Worth Running Company for shoes. I hated to go there as Maddie can’t run and has never been able to run. But I get my shoes fitted there and I knew that they would treat her with respect and courtesy.  And she was! Oh my! The salesman worked with Maddie and did a phenomenal job. When he finished I commented that he hadn’t expected something like this when he got to work today and his reply was that in his previous job he helped fit orthopedic footwear! What an incredible gift to us today. He had no idea the level of stress and heartache we were feeling.. instead he focused on Maddie and making sure that she felt stable and comfortable.

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As we left the store, I couldn’t help but notice her steps and her legs. I’m so thankful that she has these horrible braces. But I am so very mad that she has these horrible braces. I ache for her.

Maddie’s entire life has been about keeping her well and away from germs. I’m used to questions about her kidney disease, her immune system, her chronic pain. But I wasn’t prepared for mobility issues. None of us were, but I guess we should have been given that she has been in physical therapy on and off since she was 8.

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There you have it. This beautiful young woman is strong and is going to do incredible things one day. She is a bright and shining example of all that is good in this generation. Despite all the crap that life throws at her, she smiles, survives and loves others.

If nothing else, I am praying that the AFO braces in all of there “realness” will give the sense that Maddie’s struggles are real and long-term. Lots of people wear walking boots for a short period of time.. but no one wants AFO braces.  For someone that has lived with an invisible illness for 18 years, this is like turning a spotlight on her life.

And for all of you out there, I have one request.. PLEASE STOP asking her about her feet. Please help me cut off the random stranger in the parking lot that practically runs us down to ask what happened to her feet. Please help me stop workers (and even hospital workers!) from asking how she broke both feet. Please help me stop uncaring and uninformed people from asking callous questions and making hurtful comments. This experience has shown us that adults are significantly ruder than children and that the self-importance of people knows no bounds.

We leave for Disney World in just under a week. She will use a scooter as she has in the past…

I’m so glad she has the braces for the trip.

I’m so sad that she has the braces for the trip.

My heart was not ready to go from walking boots to AFO braces.

It’s not ScreenPrinting, It’s SCREAMPrinting

My dad is a master screen printer. He has screened thousands upon thousands of paper/plastic/metal items over the years. We have screen printed flags and even blankets together. But he doesn’t screen print clothing items.

But we did this week. Last spring I was able to purchase a four color screen printing system for my classroom with an education grant. It is really cool and we used it with my students for one color jobs and have had great success.  We are working our way up to the more advanced projects!

So for our 14th annual Maxwell Lakehouse trip, I asked Dad if he wanted to screenprint shirts for all 22 of us. Kylie and Dad came up with the design, I fine-tuned it and printed it, and we ordered tshirts. We made the screens and are increasing our skills with the  emulsion process.

Finally we were ready to print. Kylie and Lexi had to come help. Given that I grew up screenprinting with Dad, no way were they not going to help us! Just getting the shirts ready to print was an undertaking given that our sizes start with a 6 month old and go up to an adult xl.

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I took a time lapse video of our work. If you watch carefully you can see Kylie and Lexi screenprint a little themselves at the end! Lexi was the master at loading the shirts exactly right and Kylie pulled the shirts and set them on the drying rack.

We were doing fine.. actually we did great until about shirt number 17. At that point the fact that we were not putting the shirts under the flash dryer between colors became an issue. I knew it would be.. but I had hoped that we would make it to the end first. But no. Dad was so disappointed. I wasn’t. I guess twenty years of teaching public school has me thinking that getting 16 of the 22 done without too much of a mess is a win. Dad said we weren’t screenprinting, we were SCREAMPRINTING!

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After we took stock of the shirts, we decided to run white on top of the blue. I LOVE the way it turned out! There are a couple of shirts that are not great, but overall, I consider this a successful project.

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And next time, we will stop and figure out that blasted flash dryer so that we can print all the colors without ending up with “psychedelic” shirts!

I can’t wait to get our Maxwell Lakehouse family picture taken in a week or so.

Yearning

I have so many thoughts swirling in my head.
So many things I want to say.IMG_2104

 

But I can’t… cause I’m struggling to process it really myself.

I’m really not trying to be one of those vague woe is me social media posts people.. You know.. post

But guys, let me just say…

Specialist #25 had no answers for Maddie’s bilateral foot drop. We stumped him. And he was supposed to BE THE ONE. She has no nerve damage and no neurological reason for her feet to have just stopped working. The doctor was nice and concerned, but he had no answers.

Guys, I was scared to death over this appointment. We were assured that we would get some answers today. But Maddie knew. She didn’t have her hopes up.
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And why should she?

Her entire life has been No Answer. No Reason. No Explanation.

So we have been referred to Specialist #26 and hospital #7.

And yes, of course we are thankful that more of the incredibly scary diagnoses have been ruled out. But could we, maybe, someday get an answer?

The yearning doesn’t go away.

The ache is ever present.

The hurt tangible.

My path is full of rocks

For the last few years I’ve been working hard on my professional goals and trying to advance my career in public education. I’ve done everything “by the book.” I’ve done the course work. I’ve passed the tests. I’ve done absolutely everything that I can do, even so far as having my research published in an educational administrative journal. And I’ve hit the wall over and over again.

Each time I’ve hit the wall, I’ve reevaluated. I’ve asked myself hard questions and I’ve learned important lessons.

But this weekend, after soul-searching after yet another difficult wall, I realized that I’m going after my goals in a traditional approach.. the accepted approach… the textbook approach.

And you know what?

The textbook approach has NEVER worked for me.

My dad has often laughingly said that I created my own degree plans in college and created my own jobs. And you know what? I have. Why? Because I had to in order to survive.

But during the last few years, with a good job and some, what I thought were attainable goals, I forgot that I don’t fit the box that others want. I gave absolutely everything I had to doing what was expected, traditional and allowed.

And I found that not only does that not work for me, I didn’t get the promotions that I worked so hard for. And I really want to give up.

But I’m not.

I didn’t learn to finally read fluently in fourth grade for nothing!

Traditional approaches to education didn’t work for me as a child. My path to reading and basic math was HARD and I have the elementary report cards to prove it.  The four C’s I got in second grade on the second marking period were disappointing. Staying in at recess in third grade so that I could figure out math problems wasn’t fun.  Having to read into a tape recorder at night and play it back and listen to myself read the words wasn’t easy. But I did it. And I learned to read and I passed my math classes.

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No, I’m not showing you the grades on the inside!

Everyday I could have given up. But I didn’t.  My brand of gifted (remembering pretty much every room I’ve ever been in, including the orientation of the bed compared the window for every room I’ve slept in for the last 40 years..) doesn’t make the standard list of gifted and talent attributes.

What I learned is that I have to fight for myself and be willing to take the path full of rocks. The path full of rocks is often lonely, its tough and you are destined to get scrapped up along the way. But it is worth it, because the view from the peak is incredible.

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So that’s what I am going to do.

I’m setting out on my own path. It’s not a path of manicured grass with a pretty pond. It’s a path of rocks and I’m going to conquer it.

Watch out world.

Graduation

Graduation has come and gone and with it, Maddie completed her high school journey. There were many times over the last twelve years that I wondered if we would make it to this point.. but we did.

Watching Maddie graduate was wonderful, yet like every other accomplishment in her life, it was not without a struggle. Maddie has been wearing two walking boots for about a month now and these boots, while worn for protection and the ability to walk “normally,” are not easy to navigate ramps and uneven ground in.

But Maddie does just that.

I am so proud of her. It’s hard to not get weepy when I consider her struggles and her accomplishments. Many would use the daily pains and hurts as excuses to not leave the house, but Maddie perseveres and refuses to give up.

Maddie’s educational journey is really just beginning. She wants to be a music therapist, so that means two degrees, an internship, and a board certification. I know that she is going to do incredible things and be a difference maker for children who face physical and/or cognitive struggles.

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So for those of us out there who get frustrated when life doesn’t meet our expectations, I ask you to remember those like Maddie who face daily struggles of chronic pain, chronic illness, rare diseases and complex and often undiagnosed problems.

Since Maddie can get up each day with a smile, a song in her heart and the desire to reach her goals, surely we can join her in that journey!

String Ink Art

Well, for once something seen on Facebook actually works as shown!

Here is the video I was tagged in and messaged about. My experience with videos such as this is that they never really work the way it appears on screen.

Well, Wow!!

It works!

I didn’t use ink in a jar.. I used what I had on hand.. Bingo Markers!

Here is my video about the project.

And a close up of the finished project. So cool.

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The Lessons from A Seam Ripper

The Seam Ripper is a necessary and useful item if you sew. The seam ripper has a sharp point that allows you to get under a stitch or a knot of threads and break the seam and pull out a seam that you realize to late that was wrong.

My brand of sewing seems to be twice as much seam ripping as actual sewing.. as for every line of stitching that is kept I feel like I take out 2!

This weekend as I was taking out a truck load of seams from a project that is teaching me lots of life lessons, I thought about the gift and the lessons of the seam ripper.

So here are a few of my deep thoughts from my time with the seam ripper.

  1. Just because something looks good from the front, doesn’t mean it looks good on the back.

  2. Just because something appears to have been done correctly, doesn’t mean that it was.

  3. It may seem like a tiny mistake when you make it, but if you take the time to fix it, you realize that it was a big one that was on track to derail the entire project.

  4. If you stop and think about what you are doing before you do it, you will save time as having to go back, take apart what you have already done and start again the right way takes twice as long.

  5. Learn how to use the tool so that you don’t make a mess of the project.

And there you have it… a few life lessons that we all need to be reminded of.. even if you don’t have a monster project to finish that you made an utter mess of so you have ignored it for two months and now you have to take miles of seams out of the quilt in order to fix it and finish it!

Standing Still While the Water Rushes By

standing in the water

Have you ever tried standing still in the middle of a river while the water runs by? Or what about just standing still on the shore of a lake/ocean? It isn’t necessarily easy.  Sometimes the riverbed is slick. Sometimes the shore line is rocky and rough. Sometimes its squishy and hard to keep your balance. It takes work to stand still in an unknown environment.  It takes focus and is a whole body effort.

Lately life has felt a lot like I’m standing at the edge of a riverbed and trying to keep my balance.  I am reminded by a trip we took last fall over to a local state park. I remember so clearly the difficulty Kylie and Lexi had just standing on the rocks while a couple of inches of water flowed over their feet and past them while they tried to navigate the slick rock.IMG_8006

The picture is sweet, but what it doesn’t capture is the slip and fall into just enough water and sludge to get yucky that immediately followed! I was glad that I had kept my shoes on and stayed on dry ground.

So why am I pondering and painting about standing on the edge of the river bank and waiting for the water to recede? Because that is the promise I am taking and firmly planting myself on in order to figure out how to “do” life right now.  You see, years ago I had the privilege of hearing my husband Doug preach over Joshua 3 which is about the crossing of the Jordan river with the Ark of the Covenant, and his thoughts and my processing over the last few years give me hope and peace in the midst of chaos.

Read Joshua 3:14-17

So when the people set out from their tents to cross the Jordan with the priests carrying the ark of the covenant before the people, and when those who carried the ark came into the Jordan, and the feet of the priests carrying the ark were dipped in the edge of the water (for the Jordan overflows all its banks all the days of harvest), the waters which were flowing down from above stood and rose up in one heap, a great distance away at Adam, the city that is beside Zarethan; and those which were flowing down toward the sea of the Arabah, the Salt Sea, were completely cut off. So the people crossed opposite Jericho. And the priests who carried the ark of the covenant of the LORD stood firm on dry ground in the middle of the Jordan while all Israel crossed on dry ground, until all the nation had finished crossing the Jordan. Joshua 3: 14-17 NASB

I know. Its wordy and full of commas, but it speaks to me.

Can’t you see it? Can’t you feel it?

I’m such a visual person that I can’t help but recreate the scene in my head. The Jordan river is at flood stage. The waters are rushing and the people know that they have to cross the river. Man, my pulse starts picking up just thinking about it. I picture myself as one of the priests, holding one of the poles to the ark on my shoulder.  It works well.. responsibility, peer pressure, expectations..

(I found the painting below labeled for reuse.. feel free to picture yourself as one of the other 3!)

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I digress.

So, anyway. We arrive at the edge of the Jordan. We know that God has foretold that once we step into the water, the river will recede with the water dividing and piling up above us and below us, on the sea side being cut off and not able to flow back in. But we have to take that step. Can’t you imagine it? The river is at flood stage! The water is flowing and not only do you have to take a step into the river, but you are carrying a large and heavy burden.

But isn’t that what life is like?

While I don’t really remember the particulars from Doug’s sermon years ago, and I’ll admit that my takeaway from it might be incredibly flawed. The one thing that really stood out to me that I have pondered and considered is the idea of stepping into the water and standing still while the water recedes. I have thought about it over and over. Maybe my interpretation is wrong, but I needed the image of having to step in and hold my ground while the chaos of the running water around me receded.

Life isn’t easy and anyone that says it is, is lying and somedays I need to be reminded that while I don’t have to trudge THROUGH the water, I do have to take that first step INTO the water.

Cause really, in my mind, I see the priests holding the Ark of the Covenant just a step into the water holding firm and steady while the water rushes between their legs and runs towards the Dead Sea. Can’t you just imagine the panic that was rising in those priests before the water started visibly receding. But they stood there and the water receded and Joshua 3:17 says that all of Israel crossed on dry land.

And so for me, as I stand in the water.. maybe just an inch deep, or maybe it is up to my ankles.. or even my knees.. I am reminded to stand and let the chaos around me recede instead of trying to push through and make  a path. That isn’t my natural inclination. I’m all about taking up my machete and forging my own path.

But I don’t have to.

Sometimes being a leader is forging the path and sometimes being a leader is taking the first step and then holding still so that others can cross on dry ground.

And that is what my watercolor painting is of at the top of this post. I’ve learned how to make a path. Now I’m learning to stand and wait.

 

What I learned from watching my daughter in Colorguard

About five years ago if you asked me what colorguard was I would have asked if you meant the “flag girls” on the football field at half time with the marching band. I would have meant no disrespect, but I didn’t have a real frame of reference for colorguard beyond that they were the pretty part of the half time band performance.

Today however, if you ask me about Colorguard, I can talk about it for a looong time! Cause you see, I am a veteran “Guard Mom” whose daughter was Captain this year, is graduating from high school next month and last week performed her in final Winterguard competition. Oh.. you don’t know what Winterguard is? Well, Winterguard season is December through April and the guards perform a show entirely different from the fall and perform it inside a gym. It is quite a competition!

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So here are some of the things I learned over the last four years..

Colorguard is a SPORT.

Guard rehearsals are like practices for sports. Full sweat, smelly feet, sore muscles and long hours.IMG_2186 2

(Color/Winter) Guard is a synonym for FAMILY.

Over the last four years we have come to know the guard director, staff and students very well. These teenagers and their families have become our family.  The director has been a mentor and another mom for Maddie. Being part of the guard family is an honor.

Guard teaches the importance of the
individual WITHIN the team.

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One of the coolest parts of the color/winter guard team is that each individual and their work is incredibly important to the combined efforts of the team.  Hand positions, foot work, throwing (and catching) hard tosses, and the ability to keep up and on the beat are deal breakers for the overall look and ranking of the guard. Because of this, the team learns how to work together and use the unique skills and abilities of each member while working to get better and stronger each week.

 

Guard teaches young women that beauty and strength are two parts of the same whole!

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One of the greatest gifts that guard gives to teenage girls is the understanding that beauty and strength are two parts of the same whole. Being a member of the guard means that you have grace and dignity as well as strength and fire. These lessons learned during teen years are life changing and help girls mature and become strong and beautiful women.

I am so thankful that Maddie was a “guardie” and that I had the privilege of being a “Guard Mom!”

(Thanks to Amanda Akins and Derek Dodson for the incredible pictures!)